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Article type: Research Article
Authors: Agarwal, Neelama; * | Kumar, Vinodb
Affiliations: [a] Center for Accommodations and Support Services (CASS), University of Texas at El Paso, El Paso, TX, USA | [b] Department of Mechanical Engineering, University of Texas at El Paso, El Paso, TX, USA
Correspondence: [*] Address for correspondence: Neelam Agarwal, Center for Accommodations and Support Services (CASS), University of Texas at El Paso, TX 79902, USA. Tel.: +1 915 244 9952; Fax: +1 915 747 8712; E-mail: nagarwal@utep.edu.
Abstract: BACKGROUND: Systemic lupus erythematosus (SLE) or Lupus is one of the leading causes of work disability in the United States, accounting for about 20% of the more than estimated 1.5 million Americans with a work disability. The symptoms of lupus can have a profound impact on the person’s employment. Impacts of lupus are more pronounced among young and middle-adulthood. Studies have shown that loss in work hours cost the nation nearly $13 billion annually. The loss also impacts the individual’s work, quality of life, self-management, and self-efficacy. OBJECTIVE: In this article, the author describes the financial burden of lupus. The article also describes the substantial impact of lupus on employment outcomes for individuals living with the condition. The author also reviews major signs and symptoms of disease and their impact on employment. RESULTS: Findings from this research can be used to identify various accommodations and strategies for individuals to prevent flare-ups. CONCLUSIONS: The paper presents innovative strategies that include early interventions and how employers andco-workers can provide helpful support that includes job accommodations to individuals with lupus.
Keywords: Lupus, systemic lupus erythematosus, SLE, employment, work disability, vocational rehabilitation
DOI: 10.3233/WOR-162398
Journal: Work, vol. 55, no. 2, pp. 429-439, 2016
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