Journal of Pediatric Rehabilitation Medicine - Volume 15, issue 3

Authors: Kim, Jeonghui | An, Mihee | Kim, Janggon

Article Type: Research Article

Abstract: PURPOSE: The Measure of Processes of Care for Service Providers (MPOC-SP) is a valid and reliable instrument to measure the professionals’ perception of the extent to which they apply the principles of family-centered services in care for children with disabilities. This study aimed to evaluate the validity and reliability of the Korean translation of the MPOC-SP (Korean MPOC-SP). METHODS: The Korean MPOC-SP was completed by 132 rehabilitation service providers in 5 provinces in South Korea. Analyses for internal consistency, construct validity, and test-retest reliability were performed. RESULTS: The estimates of internal consistency (Cronbach’s alpha) of the …four scales of the Korean MPOC-SP ranged from 0.67 to 0.92. All the scales correlated highly with the other scales (r ranging from 0.61 to 0.77). In addition, all the items exhibited high item-total correlations (r s ranging from 0.40 to 0.83). Three scales had moderate to good reliability with ICCs ranging from 0.57 to 0.78; the ‘providing general information (PGI)’ scale showed low reliability (ICC 0.22). CONCLUSION: The Korean MPOC-SP can be considered a valid instrument for group-level research purposes with acceptable internal consistency, but caution is warranted regarding the low test-retest reliability of the PGI scale. Show more

Keywords: Family-centered care, pediatric rehabilitation, psychometric assessment, processes of care, self-assessment

DOI: 10.3233/PRM-210111

Citation: Journal of Pediatric Rehabilitation Medicine, vol. 15, no. 3, pp. 499-505, 2022

Authors: Thomas, Jodi | Santurri, Laura | Borrero, Lisa | Cech, Donna

Article Type: Research Article

Abstract: PURPOSE: Collaboration between physical therapists and caregivers of children who receive physical therapy is integral to providing family-centered care. Successful collaboration depends upon the therapeutic relationship built within the caregiver-therapist dyad. However, the nature of these relationships is not well understood. The purpose of this study was to explore the caregiver-pediatric physical therapist relationship from the perspectives of the caregiver and pediatric physical therapist. METHODS: A qualitative multiple case study methodology was used; a caregiver and pediatric physical therapist represented a bounded case. Each caregiver and therapist engaged in separate, semi-structured, in-depth interviews. RESULTS: Through within- …and cross-case coding, three themes were identified: physical therapist as a guide, the caregiver-pediatric physical therapist connection, and professional qualities and performance. CONCLUSION: These themes help to provide an understanding of the therapeutic relationships that can occur between caregivers and pediatric physical therapists, which can help support effective collaboration as part of providing family-centered care. Show more

Keywords: Caregiver, pediatric physical therapist, relationship, roles, therapeutic alliance

DOI: 10.3233/PRM-210081

Citation: Journal of Pediatric Rehabilitation Medicine, vol. 15, no. 3, pp. 507-516, 2022

Authors: Levin-Decanini, Tal | Henderson, Cynterria | Mistry, Sejal | Dwarakanath, Namita | Ray, Kristin | Miller, Elizabeth | Houtrow, Amy

Article Type: Case Report

Abstract: PURPOSE: Assess the effects of stay-at-home orders on access to services utilized by families of children with disabilities (CWD). METHODS: Cross-sectional weekly surveys were fielded over four weeks, during which western Pennsylvania was under stay-at-home orders. Respondents were divided into families of CWD (N = 233) or without CWD (N = 1582). Survey questions included measures of socio-economic status, and families of CWD answered questions regarding access to services pre and post-initiation of stay-at-home orders. Differences between families with and without CWD were analyzed using chi-square tests. RESULTS: Among families of CWD that had used services previously, 76.6% of survey …respondents stated that they had decreased access, with the greatest percentage experiencing loss among those previously utilizing early intervention (75.5%), outpatient therapies (69.1%), or school-based therapies (80.7%). Compared to families without CWD, families of CWD were more likely to report lower pre-COVID-19 annual incomes (p  < 0.001), job or income loss related to COVID-19 (p  < 0.001), and higher levels of perceived stress (p  < 0.001). CONCLUSION: CWD experienced loss of services during stay-at-home orders implemented as COVID-19 mitigation measures. Due to decreased access to needed services, CWD may be at risk of medical complications and loss of developmental progress. Show more

Keywords: COVID-19, children with disabilities

DOI: 10.3233/PRM-200799

Citation: Journal of Pediatric Rehabilitation Medicine, vol. 15, no. 3, pp. 517-521, 2022

Authors: Moser, Alana | Wirt, Stephen Z. | Niedzwecki, Christian

Article Type: Case Report

Abstract: Determining when a child returns to school after an acquired brain injury is difficult to assess. Many factors affect a successful hospital-to-school reintegration. The hospital school simulation allowed the Acute Pediatric Inpatient Rehabilitation Unit (IRU) interdisciplinary team to assess how the patient was functioning at specific stages of the patient healing process to target goals that explicitly helped the patient safely reintegrate into school. A patient with an acquired brain injury (ABI) participated in a hospital school simulation where a novel school simulation rubric (SSR) tool was used to evaluate completion of specific activities the patient would experience in a …traditional classroom. Results were shared with the IRU team so accommodations and modifications could be made to the IRU school recommendations letter based on the results of the final SSR. Preliminary results were found to benefit the patient as they reintegrated back to school. This study highlights the need for ongoing communication between hospital providers and educational personnel to provide patients with academic supports for school reintegration. Show more

Keywords: Acquired brain injury, school reintegration, special education

DOI: 10.3233/PRM-210052

Citation: Journal of Pediatric Rehabilitation Medicine, vol. 15, no. 3, pp. 523-527, 2022

Authors: Lohiya, Nirali | Chalipat, Shiji | Lohiya, Nikhil | Malwade, Sudhir

Article Type: Case Report

Abstract: PURPOSE: Coffin-Siris syndrome (CSS) is a rare genetic disorder characterized by the presence of particular facies, congenital malformations, intellectual developmental disorder, behavioral issues, and speech and language impairment. Thorough neuropsychological assessments in the case of CSS have been reported infrequently, and its subdomains are poorly defined. A detailed description of the clinical, neurocognitive, behavioral, socio-adaptive sequelae of the patient with CSS is provided. RESULTS: The clinical diagnosis in the patient was confirmed by genetic analysis, which identified the presence of mutation of ARID1B gene; the parents’ Sanger sequencing reported normal. The neuropsychological assessments revealed borderline intellectual functioning (IQ-75, …verbal > performance) with a mild socio-adaptive deficit score of 64 as suggested by the adaptive scale. The behavioral profile reported that the child had significant difficulties in the attention subdomain with concern in social and thought subdomains. The child met the profile for mild severity of Autism Spectrum Disorder and did not meet the criteria for Attention Deficit Hyperactivity Disorder. In addition, the child had scholastic difficulties in reading and mathematical skills. CONCLUSION: Neurocognitive, behavioral, socio-adaptive functioning and comorbidity assessment in order to provide holistic management of such children after thorough evaluation is essential for their overall functioning. Show more

Keywords: Coffin-Siris syndrome, developmental delay, neurocognitive, behavioral, socio-adaptive

DOI: 10.3233/PRM-210050

Citation: Journal of Pediatric Rehabilitation Medicine, vol. 15, no. 3, pp. 529-532, 2022

Authors: Yolcu, Gunay | Huseynli, Leyla | Kenis-Coskun, Ozge | Karadag-Saygi, Evrim

Article Type: Case Report

Abstract: Sjögren-Larsson syndrome (SLS) is a rare neurocutaneous disorder characterized by the presence of congenital ichthyosis, spasticity, and mental retardation. As with other rare genetic diseases, treatment is mainly symptomatic. Due to the absence of definitive treatment, lifelong follow-up and support of patients are important to improve the quality of life. A 7-year-old female child who was diagnosed as having SLS was referred to the rehabilitation clinic. After 20 sessions of a rehabilitation program, she started walking independently with the additional contribution of ankle-foot orthoses (AFOs). The contribution of the short-term rehabilitation approach and especially the administration of AFOs to the …independence level of the patient is emphasized herein. Show more

Keywords: Orthosis, rare disease, rehabilitation

DOI: 10.3233/PRM-201521

Citation: Journal of Pediatric Rehabilitation Medicine, vol. 15, no. 3, pp. 533-537, 2022

Authors: Grisales, Maria P. | Espinosa, Katalina | Alzate, Nestor O.

Article Type: Case Report

Abstract: CASE DESCRIPTION: A 2-month-old child required a bilateral limb amputation, right transtibial, and left transfemoral after a deep burn compromising one-third of the body surface area. Traumatic amputations of lower limbs at such an early age are uncommon and underreported in the literature, especially in middle-income countries. OBJECTIVE: To describe the long-term follow-up of the prosthetization process after traumatic bilateral amputation of a 2-month-old patient. TREATMENT: The process started with compensatory prostheses for independent sitting, followed by exoskeletal devices with SACH feet, and finally introduced dynamic feet and knee to achieve progressively independent gait. …OUTCOMES: The patient achieved functionality, autonomy, and social interaction for his age. The habilitation process continues to improve his independent gait and support upcoming life changes. CONCLUSION: Through a multidisciplinary approach, family support, and timely changes of device components according to the child’s development, this patient has been able to achieve a normal life. Show more

Keywords: Amputees, disabled children, lower limb prosthesis, artificial limbs, case report

DOI: 10.3233/PRM-210005

Citation: Journal of Pediatric Rehabilitation Medicine, vol. 15, no. 3, pp. 539-543, 2022