Affiliations: [a] Diabetes Research Centre and Division of Pediatrics, Department of Molecular and Clinical Medicine, Linköping University, Sweden | [b] Division of Child and Adolescent Psychiatry, Department of Molecular and Clinical Medicine, Faculty of Health Sciences, Linköping University, Sweden | [c] Center for Medical Technology Assessment, Department of Health and Society, Linköping University, Sweden | [d] Department of Pediatrics, Ryhov Jönköping County Hospital, Sweden | [e] Department of Pediatrics, Kalmar County Hospital, Sweden | [f] Department of Pediatrics, Västervik Hospital, Sweden
Correspondence:
[*]
Address for correspondence: Dr. S. Nordfeldt, Department of Molecular and Clinical Medicine, Diabetes Research Centre, Division of Pediatrics, Faculty of Health Sciences, S-581 85 Linköping, Sweden. Tel.: +46 13 222000; Fax: +46 13 148265; E-mail: sam.nordfeldt@lio.se.
Abstract: We have studied use of the Internet in search for diabetes-related information in a geographic population of type 1 diabetes children and adolescents. Using a randomised cross-sectional design, 90 out of 110 patients aged 5–20 years responded to a postal questionnaire. Thirty-eight subjects (42%) had searched for diabetes information on the Internet, at a median of 3 occasions, range 1–50. Out of the searching families, 32% had also shown diabetes information from the Internet to others, such as relatives, friends and school staff. Eighty-six percent had found information in Swedish, 32% in English and 68% indicated a need for more information in Swedish. 97% percent anticipated future use. Specific web-sites were suggested by 24%. Searchers as compared to non-searchers had a shorter diabetes duration (p = 0.0255) and more recent extra contacts with their caregivers (p = 0.0018). We conclude that Internet-based information and support may be requested at a high extent by patients, as a complement to regular visits to the diabetes team and other types of traditional care and education. The results suggest a great need for development of systems combining technical and human support, which is discussed. The findings may also have implications for other topics within diabetes education, other ages, and for other diagnosis groups.
Keywords: diabetes care, patient education and self-care, medical informatics, health services research, IT support, telecare
