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Article type: Research Article
Authors: Eberharter, Mona-Elisaa; * | Stummer, Haraldb
Affiliations: [a] Faculty of Business Administration, Seeburg Private University, Seekirchen am Wallersee, Austria | [b] Faculty for Management and Economics in Health Care, UMIT - Private University for Health Sciences, Medical Informatics and Technology, Hall in Tirol, Austria
Correspondence: [*] Address for correspondence: Mona-Elisa Eberharter, Faculty of Business Administration, Seeburg Private University, Seeburgstraße 8, 5201 Seekirchen am Wallersee, Austria. E-mail: mona.eberharter@gmx.at.
Abstract: BACKGROUND: Multiple sclerosis (MS) is a chronic inflammation of the central nervous system that can result in cognitive and physical deficits. It can lead to early retirement in 50% of the cases in the first 15 years of the disease without governmental support and to date, there are only a few studies which focus on measures to support people with MS at the workplace. OBJECTIVE: The aim of this study is to analyse the governmental support measures to maintain the working capacity of people with MS and to provide improvements and further approaches for their support. METHODS: A two-stage study was conducted by means of qualitative interviews. The first study was conducted using the problem-centred form with 10 experts from the health and social care sector who work with people affected by MS. The second study was conducted using qualitative interviews in biographical form with 20 people suffering from MS. RESULTS: The study participants mentioned various suggestions for improving the existing governmental support measures, such as a central support office for illness-related questions, relaxing the strict requirements for support measures, giving the regulation of support measures to federal government, changing the pension system and providing financial support for individual therapies and outpatient therapies. Currently, MS patients lack knowledge about contact persons for MS-specific questions, as well as intensive cooperation between labour market service, health service providers and companies to help find a job. CONCLUSION: A combination of the governmental support measures available so far with the proposed optimisations or additions by MS patients and experts can lead to a significant reduction in disease-specific absences and limitations, which in turn results in the preservation of the ability to work. All suggestions from the interviews need to be explored further to investigate a possible implementation.
Keywords: Multiple sclerosis, governmental support, working capacity, labour market service, rehabilitation
DOI: 10.3233/JVR-230053
Journal: Journal of Vocational Rehabilitation, vol. 60, no. 1, pp. 19-26, 2024
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