Affiliations: [a] College of Nursing, University of Wisconsin-Milwaukee, Box 413, Milwaukee, WI 53201-0413, USA | [b] Department of Nursing Research, Children’s Hospital of Wisconsin, Box 1997, MS C140, Milwaukee, WI 53201-1997, USA | Tel.: +1 414 337 0263 or +1 414 248 3789; E-mail: sawin@uwm.edu or ksawin@chw.org
Note: [1] A previous version of this paper was presented at the Spina Bifida World Congress, March 2017 (plenary on Self-Management).
Abstract: Self-management has become a central concept in individual and family-centered care. However, there are differences in both definitions and theoretical approaches that guide clinical practice and research in this emerging science. Review of theoretical approaches can assist clinicians and researchers to identify the framework or theory that best fits their approach to practice or research question. The evidence on self-management in spina bifida since the 2003 research priorities were first established is discussed and the implications for theory-based future practice and research delineated. Resources for collaborative research and practice in self-management are provided.
