Parents' experiences of splinting programs for babies with congenital limb anomalies

Subtitle:

Article type: Research Article

Authors: Durlacher, Kim M.^{a; b; c; *} | Verchere, Cynthia^{d; e; f} | Zwicker, Jill G.^{b; f; g; h}

Affiliations: [a] British Columbia Children's Hospital, Vancouver, Canada | [b] Department of Occupational Science and Occupational Therapy, University of British Columbia, Vancouver, Canada | [c] Department of Physical Therapy, University of British Columbia, Vancouver, Canada | [d] Department of Surgery, Division of Pediatric Plastic Surgery, BC Children's Hospital, Vancouver, Canada | [e] Department of Surgery, University of British Columbia, Vancouver, Canada | [f] Child and Family Research Institute, Vancouver, Canada | [g] Department of Pediatrics, Division of Developmental Pediatrics, University of British Columbia, Vancouver, Canada | [h] Sunny Hill Health Centre for Children, Vancouver, Canada

Correspondence: [*] Corresponding author: Kim Durlacher, MRSc, OT, CHT, BC Children's Hospital Occupational Therapy Department, Rm K1-200, 4480 Oak Street, Vancouver, V6H 3V4, Canada. Tel.: +1 604 875 2123; Fax: +1 604 875 3220; E-mail:kdurlacher@cw.bc.ca

Abstract: PURPOSE: To explore parent experiences with participation in splinting programs for their child with a congenital limb anomaly in the child's first year of life. While parent participation is recognized as integral to successful outcomes of splinting programs for these children, little is known about factors influencing their participation. METHODS: Through purposive sampling, 10 families recruited from outpatient clinics at a pediatric tertiary care facility participated in semi-structured interviews in this qualitative study utilizing interpretive description methodology. Constant comparative and concurrent data collection and analysis were employed. RESULTS: Themes identified: (1) An experience of adjustment; (2) The value of timely and comprehensive information; (3) Appreciation of support networks; and (4) Characteristics unique to splinting programs. Practical suggestions for program enhancements are outlined. CONCLUSIONS: Addressing parents' information, support, and individual needs are keys to promoting active parent participation in their child's splinting program, contributing to positive outcomes for their child.

Keywords: Parents, participation, limb anomalies, infant, splints

DOI: 10.3233/PRM-150337

Journal: Journal of Pediatric Rehabilitation Medicine, vol. 8, no. 3, pp. 207-217, 2015