Development and initial validation of ability levels to interpret pediatric spinal cord injury activity measure and pediatric measure of participation scores
Affiliations: [a]
Center for Outcomes and Measurement, Jefferson College of Rehabilitation Sciences, Thomas Jefferson University, Philadelphia, PA, USA
| [b] Health Outcomes Unit, Health Law, Policy & Management, Boston University School of Public Health, Boston, MA, USA
| [c]
Biostatistics & Epidemiology Data Analytic Center, Health Law, Policy & Management, Boston University School of Public Health, Boston, MA, USA
Correspondence:
[*]
Corresponding author: Christina Calhoun Thielen, Center for Outcomes and Measurement, Jefferson College of Rehabilitation Sciences, Thomas Jefferson University, 901 Walnut Street, 6th Floor, Philadelphia, PA 19107, USA. Tel.: +1 215 5036834; Email: Christina.calhoun@jefferson.edu.
Abstract: PURPOSE:To develop ability levels and descriptions to interpret Pediatric Spinal Cord Injury Activity Measure (PEDI-SCI AM) and Pediatric Measure of Participation (PMoP) scores. METHODS:Mixed-methods approach to 1.) create item maps using PEDI-SCI AM and PMoP calibration data; 2.) employ bookmarking methods and an iterative consensus process including semi-structured interviews, focus groups and surveys to establish PEDI-SCI AM and PMoP level score cut-points and descriptions; 3.) use calibration sample data to examine mean score differences across levels [analyses of variance (ANOVAs)] and assess the sample distribution (%) across levels; 4.) repeat in a separate validation sample; 5.) develop level descriptions. Throughout the mixed methods approach, the sample participants include children with spinal cord injury (SCI), parents of children with SCI, and professionals who work with children with SCI. RESULTS:Four or five ability levels were identified for each PEDI-SCI AM and PMoP domain along with descriptions for each level. ANOVA results revealed significant overall differences for level mean scores and pairwise comparisons (p < 0.05). Consensus (>80%) was achieved for all PEDI-SCI AM and some PMoP level descriptions. CONCLUSION:PEDI-SCI AM and PMoP score cut-points identify different levels of activity and participation among children with SCI. These levels and descriptions provide clinical relevance for PEDI-SCI and PMoP numeric scores.
