Affiliations: [a] Marcella Niehoff School of Nursing, Loyola University Chicago, Chicago, IL, USA
| [b] Department of Psychiatry and Behavioral Sciences, Rush University Medical Center, Chicago, IL, USA
| [c] Department of Psychology, Loyola University Chicago, Chicago, IL, USA
| [d] Department of Nursing Research and Evidence-Based Practice, Children’s Wisconsin, Milwaukee, WI, USA
| [e] Self-Management Science Center, College of Nursing, University of Wisconsin-Milwaukee, Milwaukee, WI, USA
Correspondence:
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Corresponding author: Monique Ridosh, Loyola University Chicago, Marcella Niehoff School of Nursing, 2160 S. First Avenue, 115-345, Maywood, IL 60153, USA. Tel.: +1 708 216 0336; E-mail: mridosh@luc.edu.
Note: [1] This article received a correction notice (Erratum) with the reference: 10.3233/PRM-229001, available at https://content.iospress.com/articles/journal-of-pediatric-rehabilitation-medicine/prm229001.
Abstract: PURPOSE:The purpose of this longitudinal study was to evaluate the internal consistency reliability and construct validity of the Adolescent/Young Adult Self-Management and Independence Scale-II (AMIS-II), an interview-based measure of self-management for youth with chronic health conditions. METHODS:A diverse sample of adolescents and young adults (AYA) with spina bifida (SB) (n = 64 AYA; mean 20.88; age range 18–25 years) completed an AMIS-II interview. Six years earlier, parents from 55 families completed questionnaires that assessed children’s responsibility for SB-related care (Sharing of Spina Bifida Management Responsibilities) and their ability to perform skills across condition-related tasks (The Spina Bifida Independence Survey). Parents also reported on child’s communication skills, adaptive behaviors, and independent management of finances (Adaptive Behavior Assessment System-Second Edition; Scales of Independent Behavior-Revised). Descriptive and correlational analyses were conducted to assess the construct validity and the internal consistency reliability of the AMIS-II. RESULTS:The AMIS-II demonstrated excellent internal consistency reliability (AMIS-II total scale α= 0.95; subscales α= 0.90 –0.91). Evidence in support of construct validity was found in associations between the AMIS-II and measures of child responsibility for SB-related care, ability to perform condition-related skills, and adaptive behaviors (r’s = 0.378 –0.777; p’s < 0.05). CONCLUSION:This study provides further evidence of strong reliability and validity for the AMIS-II. Additional research with this measure will facilitate a better understanding of factors related to self-management behaviors in adolescents and young adults with spina bifida.
Keywords: Self-management, independence, adolescents, young adults, spina bifida, parents
