Affiliations: [a] Marcella Niehoff School of Nursing, Loyola University Chicago, Chicago, IL, USA | [b] Self-Management Science Center, College of Nursing, Milwaukee, WI, USA | [c] Children’s Hospital of Wisconsin/UWM, Milwaukee, WI, USA | [d] Division of Developmental Medicine, Seattle Children’s Hospital and University of Washington School of Medicine, Seattle, WA, USA
Correspondence:
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Corresponding author: Monique M. Ridosh, Loyola University Chicago, Marcella Niehoff School of Nursing, 2160 S. First Avenue, 115-347, Maywood, IL 60153, USA. Tel.: +1 708 216 0336; Fax: +1 708 216 9555; E-mail: mridosh@luc.edu.
Abstract: PURPOSE: Psychometric data are reported for a new Global Family Quality of Life Scale (G-FQOLS) (3-items) evaluating family members, parents and adolescent/young adults (AYA). METHODS: Families (N= 209) were interviewed in a study addressing secondary conditions and adaptation in families of AYA with and without spina bifida (SB). Principal component factor analysis with Varimax rotation, Cronbach alpha, and Intraclass correlation (ICC) for parent-AYA agreement of FQOL assessment were conducted. RESULTS: A single factor with an eigenvalue greater than 1 was identified. Factor loadings were 0.79–0.94. Internal reliabilities were strong (α= 0.86–0.90). ICC coefficients between parent and AYA ratings were 0.38–0.48. CONCLUSION: This study provides preliminary support for the G-FQOLS. This global appraisal of Family Quality of Life (FQOL) reflects a participant’s personal weighting of domains important to him/her.
Keywords: Family quality of life, parents, adolescent, spina bifida
