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Issue title: Communication Access for Children: The Role of AAC in Pediatric Rehabilitation
Article type: Research Article
Authors: Peredo, Dawn E. | Davis, Beth Ellen | Norvell, Daniel C. | Kelly, Patrick C.
Affiliations: Developmental Pediatrics, Madigan Army Medical Center, Tacoma, WA, USA | Spectrum Research, Tacoma, WA, USA
Note: [] Corresponding author: Dr. Dawn Peredo, M.D., Wilford Hall Medical Center, Department of Pediatrics, 59 MCCS/SGOBP, 2200 Bergquist Drive, STE 1, Lackland AFB, TX 78236, USA. Tel.: +1 210 292 6805; Fax: +1 210 292 0003; E-mail: dawn@peredos.com
Abstract: Objective: To investigate the use of medical equipment by children with disabilities, the reasons for use, and prescribers of equipment. Methods: A convenience sample. Setting: Referral clinic for children with developmental conditions. Participants: Caregivers of children with motor disabilities completed an interview survey for children 0–21 years. Results: 108 parents/caregivers reported 467 (mean=4.3 per patient) pieces of owned equipment. The mean age of children was 7.1 years (± 5.0), and 49% were female. The most common diagnoses were cerebral palsy (45%), 'Other' diagnoses including intellectual disability (19%), genetic abnormality (13%), spina bifida (13%), and neuromuscular diseases (7%). Survey participants described use of the following types of equipment: orthotics (82%), bath chair (37%), seating device (34%), stander (19%), augmentative communication devices (17%), walker (14%), and gait trainer (10%). Reasons for "non-use" of equipment included: outgrown (19%), not useful (14%), and child refusal (15%). Physicians were the sole prescriber for 15% of families, whereas physical or occupational therapists most commonly recommended new equipment (76%). Conclusion: Based on parental report, children with neuromuscular disabilities use most equipment that is medically recommended. The majority of equipment needs are identified by therapists. Pediatricians can benefit from additional expertise in the provision of medical equipment for children.
Keywords: Medical equipment, children with disabilities, assistive technology, use of medical equipment, cerebral palsy
DOI: 10.3233/PRM-2010-0138
Journal: Journal of Pediatric Rehabilitation Medicine, vol. 3, no. 4, pp. 259-267, 2010
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